Today we talk to Liv Gilbert, Debbie’s oldest daughter about what it’s like when a sibling gets an autism diagnosis. She recalls her emotions at the time and how she feels about her brother.See our website for privacy information.
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49:07
Some of Favorite Moments So Far
This week we will revisit some of our favorite interviews. Don’t get us wrong, we have loved all our guests and we will likely do this more often because it was so much fun going back to some of our first interviews.See our website for privacy information.
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43:32
Gio’s Garden Celebrates Ten Years
Charlotte Deleste is a journalist in Wisconsin. Her son, Giovanni, was born with a rare genetic condition that caused him to have up to 80 seizures a day. Despite his disabilities, Gio was declared “not disabled enough” to get home nursing care. She couldn’t believe it. Instead of accepting a system that felt broken, she and her husband created what has turned into a non-profit helping hundreds of families with respite care, therapy, and family support. You will be inspired by her drive to get her son, and other families, the help they need.
“That’s all we want to do, just make a difference, make a positive difference and hope that it just keeps going and somebody else will do the same down the road.”
-Charlotte Deleste, Founder of Gio’s GardenSee our website for privacy information.
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43:10
Develop Abilities
The Utah Developmental Disabilities Council is entirely dedicated to improving the lives of Utah citizens with autism and other developmental disabilities. Erik Stoker is their Information Specialist and talks about the resources available and how he got involved.
“I believe it’s important for a self-advocate to control what they want to see happen in their life because many adults want to live independently.”
-Erik Stoker
He also has a podcast you can check out.
https://open.spotify.com/show/0vESwMIeQXucVfHKliYirYSee our website for privacy information.
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33:41
An Introduction to the IEP with The Utah Parent Center
The Utah Parent Center’s mission is to help parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. They strive to accomplish that by providing accurate information, empathetic peer support, valuable training and effective advocacy based on the concept of parents helping parents.
In this episode, we dig into the Individualized Education Program. We learn all kinds of new acronyms and get you ready for your first meeting. Jennie Dopp is a parent advocate at the Utah Parent Center. She gives us the basics in a very authentic way of understanding and utilizing the IEP.
“Working for a nonprofit, it’s about mission, none of us are in it for the money. We love what we do.”See our website for privacy information.
On "Celebrating the Spectrum," KSL's Debbie Worthen delights in the joy and happiness her son, a child with autism, has brought into her world. Each week Debbie consults the experts and connects with others who are also learning to navigate life with a child who has special needs. This is a place where we find hope, look for solutions and connect with those working to create a better world of inclusion.
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