Untold Stories: Life with a Severe Autoimmune Condition

38 episodes

Alicia: The Long Road to Answers with Seronegative MG
06/17/2026 | 24 mins.
Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection and shared experiences can help people navigate even the most uncertain journeys.
See omnystudio.com/listener for privacy information.
Mel & Lindsay: Different Diagnoses. Shared Experiences.
06/02/2026 | 27 mins.
Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with different rare diseases navigate uncertainty, self-advocacy, and the challenge of rebuilding their lives.
See omnystudio.com/listener for privacy information.
J’Sean: The Impact of MG with Ocular Symptoms
05/20/2026 | 29 mins.
In the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and how understanding that impact can help you be heard and find the right support.
See omnystudio.com/listener for privacy information.
Untold Stories is back for Season 6!
05/13/2026 | 1 mins.
Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—against all odds. This season, we’re growing our community, and welcoming voices from myositis and IgAN to the fold. We are stronger, together.
See omnystudio.com/listener for privacy information.
Brandon & Dr. Thawani: The power of shared-decisions
12/24/2025 | 29 mins.
After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata Thawani. In this special episode, Brandon and Dr. Thawani share how trust, advocacy, and shared decision-making make the doctor-patient relationship central to navigating a chronic illness.
See omnystudio.com/listener for privacy information.

More Health & Wellness podcasts

Trending Health & Wellness podcasts

About Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

Podcast website

Health & Wellness Life Sciences Medicine Science