Brain & Life

This episode of the Brain & Life Podcast was recorded live at the American Academy of Neurology's Annual Meeting. Co-hosts Dr. Daniel Correa and Dr. Katy Peters were joined by Jen Pollack from Alzheimer's Association, Rich Brennan from ALS Association, and Julienne Verdi from Alliance for Headache Disorders Advocacy to discuss how advocacy and sharing stories makes a difference. Tune in to hear these field experts share the positive effects of collaboration and advocacy!
 
Additional Resources
Become a Brain Health Advocate
The Why Behind Your Weakness- ALS Association
ASAP Act- Alzheimer's Association
HEADACHE Act- Alliance for Headache Disorders Advocacy
 
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
·       Record a voicemail at 612-928-6206
·       Email us at BLpodcast@brainandlife.org
 
Social Media
Guests: ALS Association @als; Alzheimer's Association @alzassociation; Alliance for Headache Disorders Advocacy @allianceforheadacheadvocacy
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by novelist and disability advocate Sabina Nordqvist. Sabina discusses her personal 12-year battle with idiopathic intracranial hypertension (IIH), POTS, and Ehlers-Danlos syndrome. She shares the profound impact of misdiagnosis, the importance of self-advocacy, and how her experiences in support groups led her to write a novel called It's All in Your Head that puts disabled characters front and center. Dr. Peters is then joined by Dr. Jeremy Cutsforth-Gregory, an Assistant Professor of Neurology at Mayo Clinic in Rochester, Minnesota, working in the Division of Neurologic Education. Dr. Cutsforth-Gregory explains cerebrospinal fluid and IIH, highlighting the treatments that are available and where research is going next.
 
Additional Resources
Sabina Nordqvist- It's All in Your Head
Understanding the Mysteries of POTS and Other Autonomic Disorders
A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis
 
Brain & Life Podcast Episodes on Similar Topics
Parenting and Writing While Disabled with Jessica Slice
Outdoors Woman Crystal Gail Welcome on Nature and Chronic Pain
Author Samantha Lee Schmall on Life Beyond the Shunt
 
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
·       Record a voicemail at 612-928-6206
·       Email us at BLpodcast@brainandlife.org
 
Social Media
Guests: Sabina Nordqvist @nordqvistbooks; Dr. Cutsforth-Gregory @mayoclinic
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by Isabelle Woloson and her mother, Eliza to talk about Izzy's work to promote inclusion, challenge stereotypes, and embrace individuality as a young woman with Down syndrome. Together, they share practical insights on self-advocacy, community acceptance, and creating meaningful opportunities. They also discuss practical approaches to community acceptance, self-advocacy, and the evolving landscape of support and opportunities. Dr. Correa is then joined by Dr. Seth Keller, a nationally recognized leader in developmental neurology, for a conversation about supporting meaningful and fulfilling transitions into adulthood.
 
Additional Resources
My Friend Isabelle- Book
8 Questions to Ask Your Doctor When Moving Out of Pediatric Care
How Parents Advocate for Their Children with Rare Diseases
 
Brain & Life Podcast Episodes on Similar Topics
Exploring Nutrition, Lifestyle, and Pediatric Multiple Sclerosis with Dr. Emmanuelle Waubant
Author Samantha Lee Schmall on Life Beyond the Shunt
Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima
 
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
·       Record a voicemail at 612-928-6206
·       Email us at BLpodcast@brainandlife.org
 
Social Media
Guests: Izzy Woloson @askIZZE; Eliza Woloson @elizawoloson
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life podcast co-host Dr. Daniel Correa is joined by musician Amy Grant. Amy discusses her inspiring journey of recovery following a traumatic brain injury (TBI) in 2022. She shares her personal stories of resilience, the symptoms she felt and how she dealt with them, and how music continues to be a source of connection and healing. Dr. Correa is then joined by Dr. Shae Datta, co-director of the NYU Langone Concussion Center. Dr. Datta shares expert knowledge on concussion and TBI management, recovery, and innovative therapies, highlighting how personalized care can make a difference in prognosis.
 
Additional Resources
Amy Grant
After a Traumatic Brain Injury, Work Challenges May Last Longer Than Expected
Surviving and Thriving After a Traumatic Brain Injury
 
Brain & Life Podcast Episodes on Similar Topics
Veteran Lindsay Gutierrez is Reaching New Heights with Traumatic Brain Injury
U.S. Soccer Legend Briana Scurry on Concussion and Mental Health
 
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
·       Record a voicemail at 612-928-6206
·       Email us at BLpodcast@brainandlife.org
 
Social Media
Guests: Amy Grant @amygrantofficial; Dr. Datta @nyulangone
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

On this week's episode of the Brain & Life Podcast, co-host Dr. Katy Peters sits down with actor Ryan Reynolds, who opens up about his father's Parkinson's-related hallucinations—an often overlooked but common symptom for many people living with the disease. Ryan also reflects on the care-partner experience and shares the steps he's taking to support his own brain health. Later, Dr. Peters is joined by Dr. Jori Fleisher, a movement disorders neurologist and associate professor at Rush University Medical Center in Chicago, who explains why hallucinations and other non-motor symptoms can occur in Parkinson's disease and what patients and care partners should know.
 
Additional Resources
More to Parkinson's
What Is Parkinson's Disease?
 
Related Episodes of Brain & Life Podcast
Ed Begley Jr. on Utilizing a Healthy Lifestyle to Thrive with Parkinson's Disease
Comedy and Courage: Comedian Richard Lewis on Living with Parkinson's Disease
Seen and Heard: Allie Signorelli's Young-Onset Parkinson's Story, Part One
 
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
·       Record a voicemail at 612-928-6206
·       Email us at BLpodcast@brainandlife.org
 
Social Media
Guests: Ryan Reynolds @vancityreynolds; Dr. Fleisher @rushmedical
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD