Don’t Forget to Press Pause… Travelling and Out & About
‘The one where Lindsay was developing a nasty strain of covid and M had to monopolise the airwaves’…L&M discuss the reality and practicalities of holidays and day trips with SPS. Discussions of personal experiences, trying to plan with the unpredictable nature and chronic fatigue of SPS whilst offering some tips as summer is now upon us. .
--------
1:32:42
--------
1:32:42
Stories…. Jennifer’s Story
Hello, my name is Jennifer…With heartfelt thanks to Jennifer for sharing her beautiful, talented rendition of Warrior, and more so her story, which is an openly raw monologue, recorded in hospital whilst receiving treatment.We advise listeners who are sensitive to sound please reduce your volume to listen to this podcast as music is played throughout.Note:SPS Unscripted Podcast is not responsible for any medical advice, information or pathways discussed in the content of Stories…We neither endorse nor oppose the personal views expressed therein.We strongly recommend you adhere to your medical team’s advice and discuss any concerns with them.
--------
17:47
--------
17:47
Stories…. Rocco’s Story
“Hi, my name is Rocco”With heartfelt thanks to Rocco for sharing his story so openly, a journey of 25 years to be diagnosed with SPS! (Some mild reference to self-harm)Note:SPS Unscripted Podcast is not responsible for any medical advice, information or pathways discussed in the content of Stories…We neither endorse nor oppose the personal views expressed therein.We strongly recommend you adhere to your medical team’s advice and discuss any concerns with them.
--------
19:15
--------
19:15
Announcing the new mini-series- Stories…
A short chat with M with regards to the new mini-series - Stories…Find us on: Instagram @spsunscriptedpodcast1 Facebook SPS Unscripted Podcast (Stiff Person Syndrome) Please follow & review on the podcast platforms, it helps the podcast to be more visible to others. Thank you, L&M
--------
7:56
--------
7:56
Episode:7 The Ever-Changing Day, Living with SPS
A very raw and open discussion between your hosts L&M. Stiff Person Syndrome being a spectrum disease has many faces. It can be difficult to navigate when it impacts upon daily life where you are unable to plan due to the unpredictability of the disease. As always L&M touch upon the seriousness of the topic but never fail to find joy and share laughter throughout. Thank you to all our listeners. Don’t forget to check out ‘Chorus of Voices’
Welcome to SPS UNSCRIPTED with your hosts L and M. A podcast discussing life whilst facing the challenges of Stiff Person Syndrome, a rare neurological disease. Join us in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often resulting in dehumanisation and loss of self for those with SPS. This podcast follows the journey of two friends, both one in a million, learning to heal, breathe and seek daily gratitude. Join us around the kitchen table as we discuss all things life. A gentle reminder: We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns. ***Some sensitive content, may not appropriate for children.*** All content photographs and graphics are the property of @copyright of SPS UNSCRIPTED. Find us on FACEBOOK - SPS UNSCRIPTED PODCAST Instagram @spsunscripted1 Spotify Please rate, subscribe and review Do you have SPS or connect with our content? If so please get in touch, we would love to hear from you!