Mama Mable's Caregivers Podcast

Anticipatory Grief and Caregiving: How to Live Fully When the Future Is Uncertain How do you prepare for losing someone you love while still finding the courage to live fully today?
 
Anticipatory grief is one of the most difficult and often misunderstood experiences caregivers face. When you're caring for someone with a life-limiting illness, the emotional journey can begin long before goodbye. In this deeply personal episode of Mama Mable's Caregivers Podcast, we welcome Fleur Bryant, #1 Amazon bestselling author of Never the Plan: A Memoir of Motherhood, Misdiagnosis and Unexpected Lessons, for a powerful conversation about anticipatory grief, caregiving, losing a child, disability, resilience, and finding purpose after unimaginable loss.
 
After losing her nine-year-old son, Toby, to adrenoleukodystrophy (ALD), Fleur began questioning what it truly means to live well when life unfolds differently than expected. But Fleur's story doesn't end with grief. After spending much of her life living with a misdiagnosis, Fleur now navigates Hereditary Spastic Paraplegia and uses a wheelchair full-time. She is also the founder of The Make Way Foundation, an author, coach, and endurance swimmer who recently completed a remarkable 33.3-kilometer UltraSwim in Greece using only her arms. Her journey challenges the belief that living with grief or disability means giving up on joy, ambition, or the possibility of a meaningful future.
 
In this episode, we explore:  Understanding anticipatory grief: The emotional challenges of caring for someone while facing an uncertain future.
Parenting a child with a life-limiting illness: Navigating love, fear, hope, and difficult realities.
Coping with the loss of a child: Finding ways to continue living while honoring someone you love.
Caregiving while living with a disability: Balancing personal health challenges with the responsibility of caring for others.
Finding joy alongside grief: Why happiness, gratitude, and sadness can coexist.
Redefining resilience: Learning to embrace life's possibilities while acknowledging real physical and emotional limitations.
Finding purpose after loss: How Fleur's experiences inspired her writing, advocacy, and The Make Way Foundation.
Whether you're a family caregiver, a parent supporting a child with a rare neurological condition, someone experiencing anticipatory grief, or navigating life after losing someone you love, this conversation offers compassion, perspective, and hope. Because living fully doesn't mean living without grief. It means discovering that love, purpose, and meaningful moments can still exist alongside uncertainty. 💙 About Our Guest Fleur Bryant is the #1 Amazon bestselling author of *Never the Plan: A Memoir of Motherhood, Misdiagnosis and Unexpected Lessons. She is the founder of The Make Way Foundation, an endurance swimmer, speaker, and coach who shares her experiences of motherhood, disability, loss, and resilience to help others discover what remains possible when life doesn't go according to plan. To learn more about Fleur and to purchase her book "Never The Plan," click on this link: https://www.fleurbryant.com/

 
🎧 *About Mama Mable's Caregivers Podcast* Mama Mable's Caregivers Podcast shares authentic stories, expert perspectives, and practical resources for family caregivers navigating dementia, Alzheimer's disease, autism, cancer, rare diseases, disability, grief, mental health, and caregiver burnout.
 
*Subscribe, share this episode with someone who needs encouragement, and join our community of caregivers supporting caregivers.* This conversation shares personal experiences and perspectives and is not a substitute for professional medical or mental health guidance.
 
Music Featuring Inspirational Artist Azara!
• For more information about Azara:
o Follow Azara on all social media @AzaraAzal
• Connect with Azara:
o https://linktr.ee/azaraazal
 
#AnticipatoryGrief #CaregiverSupport #GriefSupport #GriefAndLoss #ChildLoss #CaregiverMentalHealth #RareDiseaseAwareness #DisabilityAwareness #CaregiverBurnout #GriefHealing #FamilyCaregiver #FindingJoyAfterLoss #Resilience #MamaMablesPodcast

A Sister's Promise: Caregiving, Autism, and the Power of Family:
 
What happens when love becomes a lifelong promise? In this deeply moving episode of Mama Mable's Caregivers Podcast, we welcome Agazit Negash, author of Joyful Resilience, for a heartfelt conversation about autism, sibling caregiving, grief, neurodiversity, and the enduring power of family.
 
After losing both of her parents just 25 days apart, Agazit unexpectedly became the guardian and primary caregiver for her younger brother, Biruk, who is autistic. Through unimaginable loss, she discovered that caregiving is more than responsibility; it's a continuation of love, legacy, and the promises families make to one another. Raised by parents who embraced Biruk's unique way of experiencing the world, Agazit shares how compassion, patience, and understanding shaped their family and continue to guide her caregiving journey today.
 
In this episode, you'll discover:
💙 What it's like to become a sibling caregiver after the loss of your parents
💙 How autism transformed her family's understanding of love and communication
💙 The quiet strength found in everyday caregiving moments
💙 Navigating grief while honoring a loved one's legacy
💙 Why resilience is built through faith, family, and unwavering commitment
💙 Encouragement for caregivers supporting loved ones with autism and other neurodivergent conditions Whether you're a parent, sibling, caregiver, or someone supporting a loved one with autism, this conversation offers hope, encouragement, and a powerful reminder that love continues long after loss.
 
Shop Mama Mable's Caregivers Resources:  https://www.etsy.com/shop/MamaMablesC...

 
Purchase Agazit Negash Book, and Artwork:  https://www.amazon.com/Joyful-Resilie...
Shop Art | Artworks, Art works! https://www.artworksartworks.org/
Instagram: artworks_art_works

Music Featuring Inspirational Artist Azara!
• For more information about Azara:
o Follow Azara on all social media @AzaraAzal
• Connect with Azara:
o https://linktr.ee/azaraazal
 
🎧 Subscribe to Mama Mable's Caregivers Podcast for inspiring conversations on caregiving, autism, grief, dementia, cancer, neurodiversity, mental health, resilience, and healing.
 
#AutismAwareness #SiblingCaregiver #CaregiverSupport #Neurodiversity #AutismAcceptance #GriefHealing #FamilyCaregiver #Resilience #AutismFamily #MamaMablesCaregiversPodcast

Navigating today's healthcare system can feel overwhelming, especially when you're caring for someone you love.
In this empowering episode of Mama Mable's Caregivers Podcast, we welcome Dr. Terry Adirim, pediatrician, former emergency physician, healthcare executive, and one of the nation's foremost experts in healthcare leadership and patient advocacy.
With more than 30 years of experience spanning clinical medicine, federal healthcare policy, military medicine, and healthcare technology, Dr. Adirim has helped shape some of the largest healthcare systems in the United States. Now, she's helping caregivers become confident advocates through practical tools, expert guidance, and her new book, The Prepared Patient: Your Guide to Surviving the Health Care System.
Whether you're caring for an aging parent, a child with special healthcare needs, a spouse, or another loved one, this conversation will equip you with the knowledge and confidence to become a stronger advocate.
💙 Because when caregivers are prepared, patients receive better care.
 
    Shop Mama Mable's Caregivers Resources:
-       https://www.etsy.com/shop/MamaMablesCaregivers
Dr. Terry Adirim
-       Purchase Dr. Terry's Adirim Book: The Prepared Patient
o    The Prepared Patient from Amazon
o   The Prepared Patient from Johns Hopkins Press
-       Book's landing page: 
o    https://thepreparedpatient.com/ 
-       Instagram:
o   @ThePreparedPatient
 
Music Featuring Inspirational Artist Azara!
• For more information about Azara:
o Follow Azara on all social media @AzaraAzal
• Connect with Azara:
o https://linktr.ee/azaraazal
🎧 Subscribe to Mama Mable's Caregivers Podcast for expert conversations on caregiving, patient advocacy, healthcare navigation, dementia, autism, cancer care, mental health, and caregiver wellness.
 
#CaregiverSupport
#PatientAdvocacy
#HealthcareNavigation
#FamilyCaregiver
#CaregiverResources
#HealthcareTips
#MedicalAdvocacy
#CaregiverWellness
#HealthEducation  
#MamaMablesCaregiversPodcast

When someone you love is diagnosed with a serious illness, you don't just become a caregiver, you become an advocate, a researcher, a care coordinator, and often the last line of defense in a healthcare system that can be overwhelming to navigate.
In this eye-opening episode of Mama Mable's Caregivers Podcast, we sit down with Tiffany Auvil, former Healthcare System Director, caregiver advocate, and author of The No BS Guide for Caregivers: How to Survive the Healthcare Maze.
After spending more than 22 years working inside hospitals and healthcare leadership, Tiffany believed she understood the system, until her husband was diagnosed with cancer. During his treatment, a simple clerical error nearly delayed lifesaving care, proving that even healthcare professionals can find themselves fighting a system that isn't built with caregivers in mind.
Driven by both professional expertise and profound personal loss, Tiffany now empowers caregivers with practical tools to confidently navigate medical appointments, insurance challenges, treatment decisions, and patient advocacy.
Whether you're caring for a spouse, parent, child, or friend, this conversation will equip you with the knowledge, confidence, and practical tools to better advocate for the people you love.
💙 Because informed caregivers save lives, and no caregiver should have to navigate the healthcare system alone.
Shop Mama Mable's Caregivers Resources:
https://www.etsy.com/shop/MamaMablesC...

Connect with Tiffany Auvil
https://www.tiffanyauvil.com/
Purchase: "The No BS Guide for Caregivers: How to Survive the Healthcare Maze"
https://www.tiffanyauvil.com/book
https://www.amazon.com/No-BS-Guide-Caregivers-Healthcare/dp/B0H4SRJMHS/ref=sr_1_1?crid=3TW2FXDE73PNQ&dib=eyJ2IjoiMSJ9.bS75RxDB-Akc0gmkDWF-WWHegKH2vys6ub3EoNjzskNSVNth9URHNA6h9eVw_K63xX4TTmOio4HU61Tff8X415cwLH10h5pHRVEKBgXxUdu_CLs0GWAeG2clijRtKyFZuvhwIP1ojD1SWQr-l0JcgZRMTTxr09CyebtfCFAjBkf83WOv3LTGglQBmh4XPxZm4X40XCEXYHq8iVQWrs4rzpiKKgkZxX7pVrpd3pGvhp0.fsKA_lSnvcpAt6MUa-s1LIq7ZJZuq2UiJ8hCbcGtJSU&dib_tag=se&keywords=the+no+bs+guide+for+caregivers&qid=1784043674&sprefix=the+no+bs+guide%2Caps%2C173&sr=8-1

Music Featuring Inspirational Artist Azara!
For more information about Azara:
Follow Azara on all social media @AzaraAzal
Connect with Azara:
https://linktr.ee/azaraazal

🎧 Subscribe to Mama Mable's Caregivers Podcast for expert conversations on caregiving, cancer support, dementia, autism, grief, patient advocacy, healthcare navigation, and caregiver wellness.
#CaregiverSupport
#PatientAdvocacy
#HealthcareNavigation
#CancerCaregiver
#FamilyCaregiver
#CaregiverResources
#MedicalAdvocacy
#CaregiverWellness
#HealthcareEducation
#MamaMablesCaregiversPodcast

A cancer diagnosis can change everything, not only for the person receiving treatment, but for the family members and caregivers walking beside them.
In this empowering episode of Mama Mable's Caregivers Podcast, we're joined by Dr. Camille M. Williams, M.D., also known as Queen, a board-certified Radiation Oncologist, retired U.S. Army Lieutenant Colonel, and founder of Questions 4 Cancer Doctors.
With more than 20 years of experience in military and civilian medicine, Dr. Williams has dedicated her career to helping patients, caregivers, veterans, and military families navigate cancer with knowledge, confidence, and hope. From treating cancer patients and leading radiation oncology programs within the Department of Defense to advocating for veterans affected by cancer and toxic exposures, she brings both exceptional medical expertise and heartfelt compassion to every conversation.
Whether you're caring for a spouse, parent, child, friend, or you're navigating your own cancer journey, this conversation offers practical guidance, trusted medical insight, and encouragement for every step ahead.
💙 Because informed caregivers become stronger advocates, and no one should face cancer alone.
Shop Mama Mable's Caregivers Resources:
https://www.etsy.com/shop/MamaMablesCaregivers

Connect with Dr. Camille M. Williams:
Main Website: https://www.Q4CD.com

Cancer Advocacy Consult website: https://clarity.Q4CD.com

New YouTube: https://www.youtube.com/@Q4CD/

Facebook Dr. Williams: https://www.facebook.com/QueenTheMaven/

Facebook Q4CD: https://www.facebook.com/Q4CD1/

Blog: https://q4cd.substack.com/

Music Featuring Inspirational Artist Azara!
For more information about Azara:
Follow Azara on all social media @AzaraAzal
Connect with Azara!: https://linktr.ee/azaraazal

🎧 Subscribe to Mama Mable's Caregivers Podcast for expert conversations on caregiving, cancer care, dementia, autism, mental health, grief, patient advocacy, and caregiver wellness.
#CancerCaregiver
#CancerSupport
#CaregiverSupport
#PatientAdvocacy
#CancerAwareness
#RadiationOncology
#VeteranHealth
#CancerSurvivorship
#HealthcareEducation
#MamaMablesPodcast